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Patient and Public Involvement and Engagement Newsletter |
July 2025Hello,
Welcome to the July edition of our Patient and Public Involvement and Engagement (PPIE) newsletter. We hope you are enjoying the summer, and would like to take this opportunity to welcome everyone who has joined our mailing list and public involvement groups since our latest engagement events! In this monthly newsletter, you'll find a variety of opportunities to get involved in health and care research - read on to find out more. |
Research involvement opportunities |
Co creating Impact: Shaping an Inflammation Engineering Hub with Patients & the PublicWhat are we doing? This hub is hoping to explore how we can be proactive in disease management for inflammation-driven conditions, giving the power back to patients in their disease management and creating new solutions outside of hospital settings. This initial meeting will allow us to develop the proposal with you, the public, to make sure that our priority setting is representative and allow us to shape the public involvement plans for the hub.
How can you help? We are looking for people with experience of inflammation driven-disease and/or wearable health tech to attend a meeting on 13 August in Birmingham, 9.30 – 4.30pm. There is an online option but in person attendance is encouraged. How will we support you? £25/hr + travel within 50 miles of Birmingham
How to apply? Complete this online form by 25 July. |
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Have your say in how children and young people’s data is used in research!What are we doing? Children & Adolescents Data Resource (CADRE) links de-identified children and young people data (0-24 years) from healthcare, social care and education. Researchers want to hear from different backgrounds to have a say in how their data is used.
How can you help? We are looking for any adult who is a parent, carer or guardian to a child or young person under the age of 25 years old, who lives in the Midlands area, to attend three 2-hour sessions (online on Zoom) between now and December 2025. How will we support you? We will be following NIHR guidelines and offering £25/hr for all those involved - workshops will typically each last 2 hours long, with three workshops in total (£150 total compensation across all sessions for each participant).
How to apply? Email Camilla Carr, Research Associate, on c.a.f.carr@bham.ac.uk to express your interest in this opportunity by 24 July. |
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Help us design our new public contributor newsletterWhat are we doing?
The Birmingham Public Involvement Hub is developing a new newsletter for its public contributors and would like to get your input into the design of the newsletter so that it’s useful and relevant for you.
How can you help?
We are looking for public members to attend an online workshop on Wednesday 6th August 9.30 am – 11.30am where we will discuss ideas for the newsletter, get inspiration from existing newsletters and get your thoughts on what should be included. You don’t need to have any specific knowledge or experience, just be willing to share your thoughts, ideas and views on the proposed newsletter.
How will we support you?
We will offer £25 per hour for attending the meeting, so a total of £50.
How do I apply?
Please complete this short online form to express your interest by Monday 28 July at midday. |
Research engagement events from the BRC |
Simmer Down Reggae Music FestivalSunday 27 July | 12pm - 8pm | Handsworth Park, Holly Road, Birmingham, B20 2BY
If you’re local to Birmingham and attending this festival, come and say hello to our researchers and PPIE team! At our stand, we'll be promoting the NIHR Birmingham Biomedical Research Centre and encouraging members of the public to get involved in research. |
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Introduction to Public and Patient Involvement/Engagement11 September | 10:00am – 12:00pm | Online This online workshop for researchers and the public is suitable to anyone wanting to find out more about involvement and engagement of public in research.
Just email brcppie@contacts.bham.ac.uk to request a place. |
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Watch back recordings of:Our latest online research talks for the public, listed below, are all available to watch back on our website.
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Research participation opportunities from the BRC |
Share your thoughts on how your health data is usedWhat are we doing?
We want to explore how perceptions of anonymised health data use and awareness of the NHS data opt-out have evolved over the past few years. To do so, our researchers have co-developed a questionnaire with members of the public and patients.
How can you help?
Please complete the questionnaire – it should take less than 5 minutes. As this is online, for the question that asks, ‘Why are you here today?’, please choose the option of ‘other’.
How will we support you?
No payment is offered, but if you have any queries, please contact the PPIE Co-ordinator Faduma-Zahra Gure via f.m.gure@bham.ac.uk. |
Research news from the BRC |
First of its kind study for children with arthritis reveals possible new disease targetsA new groundbreaking study has mapped immune cells in kids’ joints, revealing why arthritis treatment affects children differently and bringing us a step closer to personalised care for young patients. |
Online education can enhance clinical guideline use by over 50%An international study has shown that providing health professionals with targeted online education on atrial fibrillation, a common heart rhythm problem, can significantly improve guideline-adherent care for patients. |
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In the spotlight |
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Special thanks to Davina, John, Kanta and Leena for joining us and sharing your enthusiasm for public involvement at the University of Birmingham Come to Campus Community Festival on 21 June. The event was a big success, and we are delighted to welcome the many people who have joined us since that scorching day! We are thrilled so many are interested in joining our public involvement groups and finding out more about how to be involved in research. Pictured here are some of the PPIE staff who were there on the day. |
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Check out our website to read our patient research partners’ personal experiences of being involved in research. |
ContactGot any queries or would like to enquire about joining one of our PPIE groups? Get in touch at brcppie@contacts.bham.ac.uk or call 0121 371 8486. |
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