Patient and Public Involvement and Engagement Newsletter 

May 2025

Hello,

Welcome to our May edition of our Patient and Public Involvement and Engagement (PPIE) newsletter. Here we will be sharing medicine, health and care research news, events, training and involvement opportunities with you from across the NIHR Birmingham Biomedical Research Centre (BRC). We hope you had a lovely bank holiday and are ready to dive into this month’s exciting updates! 

We hope you'll join us on Thursday 15 May, 6-7pm, for our next online research talk titled "From gut bugs to health: How changing the microbiome can help treat Inflammatory Bowel Disease (IBD)" - register now and find more details further down in our newsletter. 

Promotional image with the webinar details, as per the accompanying text-based description, and digital image of gut microbiome

Research involvement opportunities

Be part of Maternity Safety Research: Get involved!

What are we doing?

The Midlands Patient Safety Research Collaboration is expanding its ‘Maternity Safety’ theme. We are looking for new Patient and Public Involvement and Engagement (PPIE) members interested in maternity safety. Our research focuses on clinical support decision-making tools in maternity care, managing information overload for doctors and pregnant women, effective risk communication in pregnancy care, and mental health during and after maternity.

How can you help?

If you have lived experience of maternity care in the UK and are comfortable discussing your perspectives with researchers and doctors, we invite you to join our PPIE group. Your feedback on written documents, videos, and other activities will be invaluable. We especially encourage individuals from racial and ethnic minority backgrounds to share their maternity safety and care experiences. Meetings will be held three times a year either online or in person in Birmingham, and occasionally in London.

How will we support you?

You will be offered a reward for your involvement and preparation time in line with NIHR payment guidance, typically £25 per hour or £75 for a half day, plus travel expenses.

For more information, please contact us at patientsandpublic@contacts.bham.ac.uk. We look forward to hearing from you! 


Shaping the Future of Weight Medication Access: Join Our Advisory Group!

What are we doing?

National Evaluation of Weight Medication Access (NEWA) are conducting a study to understand more about access to weight medication and to shape our research by gathering experiences with weight management support.

How can you help?

You can help by joining our Patient and Public Involvement and Engagement (PPIE) group. We are looking to recruit a diverse advisory group of seven people who are 18+ and willing to attend monthly meetings. Your participation will involve sharing your experiences and insights to help guide our research.

How will we support you?

We will support you by paying for your time and covering travel costs for in person meetings. If you are interested, complete a short expression of interest form or contact us at 0117 455 7944 or info-newa-study@bristol.ac.uk and tell us a bit about yourself and why you are interested in this opportunity. Deadline to apply is 29 May 2025. 

Research engagement events from the BRC

NIHR PPI in Action webinar series: Embedding Co-design and Co-Production to Support Refugee Mental Health

Wednesday 14 May | 1pm | Online

The Routes to Wellness team are pleased to share their experience and the outcomes of their public engagement as they approach the end of their Experienced Based Co-Design project. Routes to Wellness is funded by the NIHR HSDR programme to co-design and test a peer support model to enhance refugee mental health in the community. Register here to attend. 

From gut bugs to health: How changing the microbiome can help treat inflammatory bowel disease

Thursday 15 May | 6-7 pm | Online

In this webinar, Dr. Peter Rimmer, Consultant Gastroenterologist at University Hospitals Birmingham NHS Foundation Trust and researcher at our Birmingham BRC, will uncover how the gut microbiome is linked to Inflammatory Bowel Disease (IBD), such as Crohn’s disease and ulcerative colitis. These long-term diseases affect the intestines and can be painful and disabling. Research suggests the gut microbiome can play a big role in causing and managing IBD.  Keen to learn more? Register now to join us.
Can't make it? Don't worry - we'll upload the talk recording on our website in the following days.

Dr Peter Rimmer talking in our trailer video

Women’s Health: Lunch and Learn workshop

Saturday 31 May | 10 am | Centrala (158 Fazeley Street, Unit 4, Birmingham B5 5RT)

This community outreach event is designed for women whose first language is not English, including refugees and migrants. The workshop aims to raise awareness about women's health and provide opportunities to discuss various topics with doctors and scientists. We are also offering a free pizza lunch!

Limited spaces available. Please register via Eventbrite or contact patientsandpublic@contacts.bham.ac.uk if you have difficulties registering. 


BRC on air: Fresh Breath

Listen to Dr Praveen Sharma discuss how different types of bacteria in our mouths affect the rest of our bodies, and the link between gum disease and systemic conditions such as diabetes and cardiovascular disease. Catch him on BBC Sounds.

Research news from the BRC

Woman holding painful stomach

New funding for groundbreaking gut microbiome study to fight bowel cancer and bowel disease

Our researchers have been awarded funding to investigate the composition of faecal microbiota transplants and their potential as a transformative treatment for gut-related diseases. 

Patient receiving vaccination in upper arm

Leukaemia patients should continue BTKi treatment around COVID-19 vaccination

A clinical trial found that patients with Chronic Lymphocytic Leukaemia being treated with Bruton Tyrosine Kinase inhibitors (BTKi) should continue their therapy while receiving COVID-19 vaccination, as pausing therapy doesn't improve antibody response to the vaccine.

In the spotlight

Joanne

This month we feature Joanne, one of our hard-working patient research partners whose role has been vital in shaping out BRC communications - including reviewing the template of this very newsletter! Writing about her experience, Joanne says: "It’s brilliant to be part of a team that listens, reflects and takes action, based on our input."

Following the article in our April newsletter and on our website, where we learned more about our public contributor Emily Lam and her work, we now have additional information to share from her. Check out her updated blog.

Contact

Got any queries or would like to enquire about joining one of our PPIE groups? Get in touch at brcppie@contacts.bham.ac.uk or call 0121 371 8486.

Logos of the Birmingham BRC partner organisations: University of Birmingham, University Hospitals Birmingham NHS Foundation Trust, Aston University, Keele University, University of Oxford, Sandwell and West Birmingham Hospitals NHS Trust, Birmingham Community Healthcare NHS Foundation Trust, Birmingham Women's and Children's NHS Foundation Trust