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Patient and Public Involvement and Engagement Newsletter |
January 2025Hello,
Welcome to our third monthly Patient and Public Involvement and Engagement (PPIE) newsletter. Here we will be sharing medicine, health and care research news, events, training and involvement opportunities with you from across the NIHR Birmingham Biomedical Research Centre (BRC). |
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Happy New Year!We hope you have all managed to have a lovely break over the festive period and are raring to go for 2025! Please see below for this month’s opportunities to get involved in research. |
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Research involvement opportunities |
Cancer Research UK Clinical Trials Unit (CRCTU) Patient Advisory Board (PAB)What are we doing? If you have experience of being involved in healthcare research and/or lived experience of cancer (directly or via a family member), you are invited to apply to join the Patient Advisory Board (PAB) at the Cancer Research UK Clinical Trials Unit (CRCTU).
The PAB will guide research priorities, oversee PPIE activities throughout the unit and champion equality, diversity and inclusivity (EDI). Through their work, the PAB will help to ensure that the research carried out by the CRCTU is of high quality and is relevant to the communities we serve. How can you help? Members will serve an initial term of 24-36 months, meet quarterly online for 2 hours and meet once per year in Birmingham, UK. How will we support you? Members will be reimbursed for their time, as well as for reasonable travel and subsistence expenses. Honorarium for the 2-hour meetings will be £50 plus a £5 virtual activity allowance. For in-person meetings, the day rate is £80. Training is also part of this role, including an induction. Contact us
To apply, please complete this form by the 17 January, or if you are interested in finding out more, contact Rhianna Parsons, the CRCTU PPIE Officer via email at r.h.parsons@bham.ac.uk. She will be happy to schedule a telephone call, videocall or in person meeting, or discuss via email. |
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Change NHS surveyThe NHS has been there for us for over 76 years. But to make sure the NHS is here for the next 76 years, doing all it can to support the health of everyone, they need your help. They want to have the biggest ever conversation about the future of the NHS.
It doesn’t matter whether you have a lot or a little to say. Your views, experiences and ideas will shape a new 10 Year Health Plan for England. This is open to everyone. If you are a member of the public or someone who works in health and care in England, fill out the survey, to share how the NHS needs to change. |
Research news from the BRC |
New study to ensure personalised treatments for rheumatoid arthritisBRC researchers have been awarded £3.5M funding to investigate the patient response to personalised therapies for rheumatoid arthritis - with the aim to match the right treatments to the right patients sooner. |
Research reveals economic burden of tooth decay is highest in deprived groupsThe economic impact of dental caries is disproportionately higher in the most deprived groups, with estimated per-person costs of approximately £18,000 in the UK that could be dramatically reduced with targeted preventative measures, found new research. |
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New recommendations to increase transparency and tackle potential bias in medical AI technologiesPatients will be better able to benefit from innovations in medical artificial intelligence (AI) if a new set of internationally-agreed recommendations are followed. |
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Global trial finding a cure for rare childhood cancer opensFirst trial sites have now opened in the UK to trial multiple new treatments and offer better chance of survival for hundreds of young people around the world who have not responded to treatment for B-cell Non-Hodgkin Lymphoma, or who have relapsed. Read the full story, including the perspective of a patients' family. |
Research engagement events from the BRC |
NIHR PPI in Action webinar series – Involving Children and Young People in an Evidence Synthesis Around Prevention of Childhood ObesityPatient and public involvement is a prerequisite for all research funded by NIHR. It can enhance the relevance and quality of research and help build trust in the research and its outcomes. Watch this webinar to learn more about how PPI has been done at Bristol and get inspiration for your own involvement and engagement in research projects. |
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Public events at The ExchangeThursday 16 January 2025, 10am-1pm | The Exchange, 3 Centenary Square, Birmingham Did you know that the Exchange, the University of Birmingham’s city-centre venue, hosts a public programme of free exhibitions, events and family-friendly activities? Book onto their next engagement event, titled Unlocking the Vaults: Step into History Taster Day, to dive into the rich history and enduring legacy of the Birmingham Municipal Bank. |
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Understanding Cancer VaccinesWednesday 22 January 2025 | 1pm- 2:30 pm | Online
Join the Birmingham and Leicester Experimental Cancer Medicine Centres in an online event to discover more about cancer vaccines. Explore the background to cancer vaccines and examples of cancer vaccines in practice. You will have the opportunity to ask questions and understand how cancer vaccines can be used to prevent and treat cancer.
Register for your free place here. If you have any questions about the event, please contact Karen Turner at k.turner.1@bham.ac.uk. |
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Let’s talk about living well with a serious illnessSaturday 25 Jan 2025 | 12:00 - 2:00pm | Learning Space 2, The Herbert Art Gallery and Museum, Coventry This free information event, organised by experts from the universities of Warwick and Birmingham, will enable you to learn about what free support is currently available for people with serious illnesses in the UK. This event is particularly relevant for anyone living with a serious and life-limiting condition, and those who are important to them. However, all are welcome! Register here. |
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Sci-Art Perspectives in Women’s Health: PCOS and GDMThursday 30 January 2025 | 6:30-8:30pm | Scale Space in White City, London
Join Dr Caroline Gillett and others from the BRC Women’s Metabolic Health theme for an event showcasing arts outputs emerging from discussions between researchers, artists and people with lived experience of polycystic ovary syndrome (PCOS) and gestational diabetes mellitus (GDM). This project is in collaboration with the MRC Laboratory of Medical Sciences. Free & open to all – but registration is required. Learn more and register here. |
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University of Birmingham Community DaySaturday 21 June 2025 2025 is the University of Birmingham’s 125th anniversary and there is lots to celebrate. Watch this video to find out more or visit our website for full details of events and activities. There is so much exciting researching taking place and we are looking forward to sharing it with you throughout the year.
Save the date for this free community event to learn more about the University of Birmingham and its research. More details will follow in future editions. |
Can you help us share good practice?Have you been involved in a piece of research that you feel shows good practice for public involvement? Are you willing to share that with us so we can improve how we involve the public in our research? The case studies will be examples of PPIE which will help our researchers to increase their knowledge of good practice, leading to better research outcomes and PPIE practices.
Please let us know if you have something you think we can share, and we are happy to offer support to create it (including offering payment). Just contact us via brcppie@contacts.bham.ac.uk. |
ContactGot any queries or would like to enquire about joining one of our PPIE groups? Get in touch at brcppie@contacts.bham.ac.uk or call 07824841785. |
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